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Occurrences in the Congressional Record

Entry Title Date
Ensuring Access To Clinical Trials Act Of 2015 September 28, 2015
Paul Ryan, R-WI
"Dear Chairmen Ryan and Boustany and Ranking Members Levin and Doggett: The undersigned organizations, representing millions of Americans with rare and genetic diseases, advocates, industry, and academic institutions, write to express strong support for H.R. 209/S. 139, the Ensuring Access to Clinical Trials Act of 2015. This legislation will permanently remove a barrier to clinical research and allow Supplemental Security Income (SSI) and Medicaid recipients to participate in and benefit from clinical trials without fear of losing vital benefits. The Ensuring Access to Clinical Trials Act of 2015 eliminates the sunset clause from the Improving Access to Clinical Trials Act of 2009 (IACT), legislation signed into law in 2010, making the IACT a permanent law. This will allow patients with rare diseases to continue to receive up to $2,000 in compensation for participating in clinical trials without that compensation counting towards their income eligibility limits for SSI and Medicaid. Removing barriers to drug trial participation is particularly important as recent advances in medical research and technology allow for the development of new and promising medications. Securing an adequate number of clinical trial participants is vital for therapies that treat rare conditions, but rare disease researchers in particular often have difficulty recruiting drug trial participants, simply because they have a smaller pool of patients. Further, with the advent of precision medicine, therapies are being customized to treat a patient’s specific genetic makeup. These types of trials often require clinical trial participants bearing specific genetic mutations, which necessarily creates an even more complex and exclusive clinical trial recruitment process. Ensuring that all patients with rare diseases are able to participate in clinical trials can help open the door for the advancement of new targeted therapies in many important areas of medicine, including cancer and rare diseases like cystic fibrosis. Now is the time to ensure that all patients have access to clinical trials for potentially life-saving treatments. We look forward to working with you to secure passage of this bill to enable Social Security beneficiaries to participate in clinical trials so that research into life-saving treatments may continue to advance. Sincerely, Actavis Adult CF Program—Northwestern University Adult Polyglucosan Body Disease Research Foundation APBDRF Alpha-1 Foundation ALS Association American Association for Respiratory Care (AARC) American Autoimmune Related Diseases Association (AARDA) Amyloidosis Support Groups Inc. Ann & Robert H. Lurie Children’s Hospital of Chicago Antonio J. and Janet Palumbo Cystic Fibrosis Center, Pediatric and Adult Program, Children’s Hospital of Pittsburgh UPMC Association of Clinical Research Organizations (ACRO) Association of Gastrointestinal Motility Disorders, Inc. "
Tsa Office Of Inspection Accountability Act Of 2015 September 28, 2015
Richard Durbin, D-IL
"We had a little press conference with the local Congressman, Mike Quigley and Jan Schakowsky, and people who represented the food pantries of Chicago in that area. They are worried about a shutdown and what a shutdown means to them. How would it affect the All Saints Episcopal Church food pantry and the men and women who go in there on a regular basis to pick up some canned goods to get by? Here is what it means. Many of these people are on food stamps. We call it the SNAP program now. The SNAP program, on average, gives a person food worth $7 a day, so the notion that people are going out for steak dinners on food stamps is not quite accurate."
Recognizing The Inauguration Of Dr. Rebecca Chopp September 17, 2015
Diana DeGette, D-CO
"Mr. Speaker, I rise to honor Dr. Rebecca Chopp on the occasion of her inauguration as the chancellor of the University of Denver. An advocate for education, inclusivity and community, Dr. Chopp brings decades of leadership experience and success to DU. As a first-generation college student, she understands the importance of access to college for all and the need to continue to mentor and nurture students for their success and that of their community. After earning a BA from Kansas Wesleyan University and a Master of Divinity from St. Paul School of Theology, Dr. Chopp went on to receive her PhD from the University of Chicago. She has received six honorary doctorates from additional institutions and distinguished awards from each of her alma maters. Dr. Chopp has served as dean at Yale Divinity School, as provost and executive vice president for academic affairs at Emory University, and as president of Swarthmore College and Colgate University. She is also a widely published author. While at Swarthmore, Dr. Chopp was committed to admitting the most highly qualified students without regard to financial circumstances, and she supported innovative ways to build new, inclusive communities motivated to contributing to the common good. Though she took the reins during the middle of the Great Recession, she steered Swarthmore through this time without cutting faculty or financial aid. Dr. Chopp was the first woman to serve in several of her previous roles and is the first woman chancellor for DU. She is a true role model and trailblazer. Dr. Chopp joined the University of Denver in September of last year as its 18th chancellor. Within her first 100 days she announced Imagine-DU, a community-wide effort that focused on transforming the student experience, expanding the design of knowledge, and engaging in new ways with the surrounding areas. Chancellor Chopp envisions the University of Denver as an institution capitalizing on the changes and opportunities that come of an institution invested in the 21st Century. In addition, she already has several new innovative projects including serving a more diverse student body and building the next generation of leaders with the establishment of the Latino Leadership Institute, addressing the needs of an aging population in the Knoebel Center for the Study of Aging, and a new interdisciplinary approach to science, technology, engineering and mathematics (STEM) with the Daniel Felix Ritchie School of Engineering and Computer Science. Dr. Chopp has been quoted as saying, “As in any university, the most important resource is its people.” In her case, that could not be more true. She will be an invaluable resource to DU. Please join me in commending Dr. Rebecca Chopp for her continued commitment and passion for education and community. Her persistence and dedication are an inspiration to build a better future for all who live in Colorado."
Honoring Mr. Edward F. Mcelroy September 16, 2015
Daniel Lipinski, D-IL
"Mr. Speaker, I rise today to celebrate the 90th birthday of a Chicagoland icon, Mr. Edward F. McElroy. It is my pleasure to pay homage to a man who has entertained and informed residents of Chicagoland for almost 70 years. Ed McElroy began his long and storied career in 1946 under the guidance of radio personality Bob Elson. His first opportunity to cover nationwide news and sports came with Eddie Hubbard on the Chesterfield Show for WIND, and in 1950, he joined WJJD, another local station in Chicago. Over the last 70 years, Mr. McElroy has delivered news to Chicagoland on an incredible variety of platforms and his work continues today. He currently hosts the TV shows Community in Focus and the Ed McElroy Show where he interviews local newsmakers. Outside of the enduring impact his work in broadcasting has had on the people of Chicago, Ed McElroy also deserves recognition for his outstanding service to his community. Mr. McElroy has always been willing to take time out of his busy schedule for those in need. He has entertained hospitalized veterans and underprivileged children at LaRabida Children’s Hospital and he visits schools to teach students about patriotism. Veterans in particular have benefited from the generosity of Ed McElroy. A veteran himself, Mr. McElroy served our country during World War II in the Army Air Corps and became involved in veterans issues shortly after his service. Among his long list of accolades, he has served as National Commander of the Catholic War Veterans of the United States of America, as well as State Commander for Illinois. Finally, Ed McElroy has been consistently active with the Chicago Policy Department. His efforts to improve the welfare of Chicago Police Officers and their families have been recognized by police organizations across Chicagoland. Mr. McElroy, father of three and grandfather of six, has had a hugely successful career and continues to have an impact on the day-to-day lives of Chicago area residents. I ask my colleagues to please join me in celebrating the 90th birthday of Edward F. McElroy."
Remembering Yoshi Katsumura August 5, 2015
Richard Durbin, D-IL
"For more than three decades, Yoshi’s Cafe has won the hearts and stomachs of Chicago and the country. Yoshi’s has been featured on the Food Network and listed among “America’s Top Tables” by Conde Nast’s Gourmet magazine. His fusion of cultures brought diners to North Halsted Street for dishes like Hamachi tartare and the Wagyu burger."

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